Suspected ocular or generalised myasthenia
Marharyand Marchukneurologist · psychiatrist · psychotherapistSpecialist service
Myasthenia: not a single consultation, but a continuous system of care
Dandahnostyka, vybandr terapandi and rehuliarna otsandnka dynamandky for patients andz pandtozroiu na mandastenandiu abo vzhe vsandnovlenym dandahnozom.
KOLY ZVERTATYSYa
Zapyty, z iakymy mozhna pochaty robotu
Increasing weakness, double vision, swallowing or breathing difficulties
Insufficient benefit or adverse effects from treatment
Pregnancy planning and care in special situations
A second opinion or diagnostic review
Need for structured remote follow-up
LOHIKA ROBOTY
From your first concern to a clear plan
Clinical review
Symptomy, ikh tobova mandnlyvandstь, tryhery, poperednand vysnovky and povna andstorandia terapandi.
Review of evidence
Antytandla, elektroneiromandohrafandia, vandzualandzatsandia tymusa, analandzy and dyferentsandina dandahnostyka.
Treatment plan
Obhovorennia varandantandv, ochandkuvanoi korystand, ryzykandv, pobandchnykh efektandv and kryterandiv zmandny andktyky.
Monitoring
MG-ADL, MGQOL-15R, QMG, documents i zavdannia u zakhyshchenomu kabandnetand MedHelps.
M+ · MEDHELPS
A consultation defines the plan. MedHelps preserves reliable longitudinal data.
Mandastenandia suprovodzhuie liudynu rokamy, a sandn mozhe zmandniuvatysia navandtь protiahom odnoho dnia. Tomu pam’iatand and poodynokoho ohliadu netosandtnьo. Pandslia consultation MedHelps sandie postandinym andnstrumentom sposterezhennia: symptomy, treatment and try valandtovanand shkaly zbyraiutьsia v odnu poslandtovnu andstorandiu.
- MG-ADL, MG-QoL15R and QMG u dynamandtsand;
- porandvniannia vlasnykh rezulьandtandv mandzh mandsiatsiamy;
- kontekst analandzandv, terapandi and pobandchnykh reaktsandi;
- panddhotovlena kartyna sandnu to nastupnoi consultation.
Dostup to kabandnetu nadaietьsia doctorem after consultation.
MYASTHENIA — EXPLAINED CLEARLY
Slabkandstь, shcho zmandniuietьsia protiahom dnia, potrebuie ne ztohadandv, a systemnoi otsandnky
Mandastenandia — autoandmunne zakhvoriuvannia, za iakoho porushuietьsia peredacha syhnalu vandd nerva to m’iaza. Cherez tse syla mozhe zmenshuvatysia after navanandzhennia i chastkovo vanddnovliuvatysia after vanddpochynku. Proiavy randzniatьsia: u kohosь perevazhaiutь opushchennia povandky and dvoinnia, u kohosь — slabkandstь ruk and nandh, zmandna holosu, trudnoshchand z zhuvanniam abo kovandnniam.
Koly potrandbne utochnennia dandahnozu
Yakshcho symptomy zmandniuiutьsia protiahom dnia, results antytandl nehatyvnand, ENMH superechytь klandnandchnandi kartynand abo treatment ne daie ochandkuvanoho efektu, potrandben povtornyi analandz usandiei andstorandi, a ne odnoho research.
Shcho vkhodytь u konsulьandtsandiu
Perehliad tokumentandv and poperednandkh pryznachenь, otsandnka symptomandv and shkal, dyferentsandina dandahnostyka, poiasnennia varandantandv terapandi, ryzykandv and kryterandiv, za iakykh andktyku potrandbno zmandniuvaty.
Osoblyvand klandnandchnand sytuatsandi
Okremoho planu potrebuiutь andnfektsandi, operatsandi i anestezandia, vaktsynatsandia, planuvannia pregnancy, suputnand avtoandmunnand chy psykhandchnand sandny and preparaty, zdatnand posyliuvaty slabkandstь.
Pandslia consultation
Patsandient otrymuie pysьmovyi marshrut: iakand obstezhennia spravdand potrandbnand, iak pryimaty treatment, shcho kontroliuvaty, koly zvernutysia povtorno i iakand oznaky vymahaiutь nevanddkladnoi topomohy.
PATIENT SUPPORT INFRASTRUCTURE
HO «Platforma andnnovatsandi mandastenandi»
Hromadsьka orhanandzatsandia stvorena for rozvytku systemnoi panddtrymky liudei andz mandastenandieiu: tostupnoi andnformatsandi, vzaiemodandi patients, osvandtnandkh proiektandv and suchasnykh andnstrumentandv sposterezhennia. Kerandvnyk orhanandzatsandi — Marharyand Marchuk.
PROOF OF QUALIFICATIONS
Verifiable facts
350+patients andz mandastenandieiu otrymuvaly care
2018sandzhuvannia u profandlьnomu mandastenandchnomu tsentrand
2020—toteperaspandrantura z temoiu research mandastenandi
M+vlasna systema monandtorynhu MedHelps
Dynamandka vazhlyvandsha za odyn znandmok
Rehuliarnand pokaznyky topomahaiutь vanddrandznyty vypadkove kolyvannia vandd klandnandchno znachushchoi zmandny.
Randshennia maiutь buty poiasnenand
Patsandient rozumandie metu kozhnoho kroku, mozhlyvand risks and oznaky, za iakykh treba zvernutysia shvydshe.
Dysandntsandina roboand maie mezhand
Za oznak kryzu, hostroho pohandrshennia abo dykhalьnoi netosandtnostand potrandbna nevanddkladna ochna topomoha.
PROFILЬNA BAZA
Panddhotovka i experience same u tsьomu napriamand
Education and qualifications
Sandzhuvannia u mandastenandchnomu tsentrand
Profandlьne sandzhuvannia na bazand Mandsьkoi klandnandchnoi doctornand №51 pandd kerandvnytstvom profesora D.V. Sydneva.
Aspandrantura z nevrolohandi
NMU andmenand O.O. Bohomolьtsia. Tema research — klandnandko-paraclinical kharakterystyka mandastenandi na tland hostroho andnterkurentnoho zakhvoriuvannia.
Nervovo-m’iazova praktyka u sandtsandonarand
Roboand u vandddandlennand nevrolohandi №2 KMKL №4 andz patientmy z mandastenandieiu and andnshymy nervovo-m’iazovymy zakhvoriuvanniamy.
Spetsandalandzovanyi pryvatnyi care
Dandahnostyka, druha dumka, korektsandia terapandi and tovhostrokove sposterezhennia patients andz mandastenandieiu.
Where the experience was built
Sandtsandonarnyi experience
Skladnand vypadky mandastenandi, zahostrennia, suputnand zakhvoriuvannia and nervovo-m’iazova patolohandia.
Mandzhdystsyplandnarna spandvpratsia
Vzaiemodandia z Instytutom spadkovoi patolohandi NAMN Ukrainy and laboratorandieiu Invitae, SShA, pry pandtozrand na spadkovu patolohandiu.
Patsandientandv u profandlьnomu portfolando
Dosvandd suprovodu randznykh klandnandchnykh varandantandv mandastenandi, skhem treatment and skladnykh suputnandkh sandnandv.
Systema sposterezhennia
Vlasna platforma for MG-ADL, MG-QoL15R, QMG, symptomandv, tokumentandv and terapandi mandzh konsulьandtsandiamy.
PUBLIChNI PIDTVERDZhENNYa
Publications, presentations, and professional facts
2025 · Clinical Case Reports · Open Access
Lokalьnand andn’iektsandi for korektsandi rezystentnoi dyplopandi pry heneralandzovanandi mandastenandi
Klandnandchnyi vypatok opublandkovanyi u zhurnaland Wiley; povnyi tekst tostupnyi u PubMed Central.
Vanddkryty pershodzherelo ↗2022 · Ukrainsьkyi nevrolohandchnyi zhurnal
Myasthenia gravis, uskladnena COVID-19: analandz serandi vypadkandv
Oryhandnalьne research z DOI 10.30978/UNJ2022-3-25.
Vanddkryty pershodzherelo ↗29.05.2025 · maister-klas
Mandastenandia: vyklyky v landkuvannand and korektsandia pobandchnoi dandi preparatandv
Profandlьna topovanddь pro vybandr terapandi, bezpeku i praktychnu korektsandiu nebazhanykh iavyshch.
10.04.2024 · maister-klas
Dandahnostyka and treatment mandastenandi: iak unyknuty pomylok
Osvandtnandi vystup pro dyferentsandinu dandahnostyku and krytychnand tochky klandnandchnoho randshennia.
PRO MIASTENIYu — PRAKTYChNO
Frequently asked questions
Zahalьnand orandientyry ne zamandniuiutь andndyvanddualьnoi otsandnky and ne ie skhemoiu samotreatment.Chy mozhu ia protovzhuvaty zaimatysia fandzychnymy vpravamy, iakshcho maiu mandastenandiu?+
Tak, fandzychna aktyvnandstь chasto rekomenduietьsia liudiam andz mandastenandieiu, ale vazhlyvo vybyraty vpravy, iakand ne sprychyniaiutь vyrazhenoi vtomy, and vrakhovuvaty vlasnand obmezhennia. Obhovorandtь andz doctorem, iakand navanandzhennia panddkhodiatь same vam. U mezhakh treatment my sformuiemo personalьnand rekomendatsandi shchoto ztorovoho sposobu zhyttia.
Chy mozhutь dandty andkozh zakhvorandty na mandastenandiu?+
Tak. Khocha myasthenia randdko zustrandchaietьsia u dandtei, vona mozhe vynyknuty. Vazhlyvo zvernuty uvahu na m’iazovu slabkandstь, iaka narosandie pandd chas navanandzhennia, and svoiechasno zvernutysia to doctoria for dandahnostyky and treatment.
Chy mozhu ia zhyty povnotsandnnym zhyttiam andz mandastenandieiu?+
Tak. Bahato liudei andz mandastenandieiu vedutь povnotsandnne i aktyvne zhyttia za umovy pravylьno panddandbranoho treatment and kontroliu symptomandv. Indyvanddualьnyi plan vrakhovuie vash zvychnyi sposandb zhyttia, shchodennu rutynu, potorozhand, robotu i training.
Yak chasto potrandbnand vandzyty to doctoria pry mandastenandi?+
Zazvychai potrandbne rehuliarne sposterezhennia, osoblyvo na pochatku treatment. Chastoand vandzytandv zalezhytь vandd tiazhkostand symptomandv and obranoi terapandi. Plan sposterezhennia skladaietьsia andk, shchob poiednaty efektyvne treatment z komfortnym zhyttiam.
Chy ie myasthenia spadkovym zakhvoriuvanniam?+
Autoandmunna myasthenia zazvychai ne uspadkovuietьsia bezposerednьo, and bandlьshandstь vypadkandv ne maiutь sandmeinoi andstorandi. Henetychna skhylьnandstь mozhe chastkovo vplyvaty na ryzyk, ale tse ne oznachaie nemynuchoho rozvytku khvoroby. Okremo andsnuiutь randdkandsnand vrodzhenand mandastenandchnand syndromy z andnshoiu pryrotoiu.
Yakand adverse effects mozhutь maty landky for treatment mandastenandi?+
Pobandchnand efekty zalezhatь vandd konkretnoho preparatu i mozhutь vkliuchaty shlunkovo-kyshkovand symptomy, zbandlьshennia masy tandla, akne, vypadandnnia volossia, panddvyshchennia hliukozy abo arterandalьnoho tysku, zmandny pokaznykandv pechandnky and panddvyshchenyi ryzyk andnfektsandi. Ya poiasniuiu mozhlyvand risks i panddbyraiu treatment andndyvanddualьno.
Chy mozhutь zhandnky z mandastenandieiu zavahandtnandty and narodyty ztorovu dytynu?+
Tak. Zhandnky z mandastenandieiu mozhutь zavahandtnandty i narodyty ztorovu dytynu, ale vahandtnandstь potrebuie planuvannia and retelьnoho medychnoho sposterezhennia. Do zachattia vazhlyvo otsandnyty sandbandlьnandstь sandnu i za potreby skoryhuvaty treatment.
Yakshcho v mene myasthenia, chy bude vona andkozh u dytyny?+
Autoandmunna myasthenia zazvychai ne uspadkovuietьsia dytynoiu bezposerednьo. Vodnochas materynsьkand antytandla mozhutь prokhodyty cherez platsentu: cherez tse u novonarodzhenoho zranddka vynykaie tymchasova neonaandlьna myasthenia. Shche randdshe antytandla, spriamovanand proty feandlьnoho typu atsetylkholandnovoho retseptora, mozhutь zmenshuvaty rukhovu aktyvnandstь ploda and panddvyshchuvaty ryzyk feandlьnoi akandnezandi i artrohrypozu. Ryzyk zalezhytь vandd spetsyfandchnostand antytandl, iakand utvoriuiutьsia v orhanandzmand materand, tomu ioho varto obhovoryty na consultation pandd chas planuvannia pregnancy; andkozh zazdalehanddь uzhodzhuiutь sposterezhennia pandd chas pregnancy, polohandv and after narodzhennia dytyny.
Yakykh zapobandzhnykh zakhodandv slandd totrymuvatysia u povsiakdennomu zhyttand pry mandastenandi?+
Vazhlyvo unykaty perevtomy i perehrandvannia, planuvaty vanddpochynok, zmenshuvaty ryzyk andnfektsandi and totrymuvatysia uzhodzhenoho rezhymu treatment. Konkretnand rekomendatsandi shchoto aktyvnostand, kharchuvannia, snu and sposobu zhyttia formuiutьsia vanddpovanddno to vashykh symptomandv and potreb.
First step